Saturday, May 26, 2012

The Super Mom Award!

I had a very hard day on Wednesday. You can read all about it HERE. The first person I told about it (or rather, who I completely spilled my guts to) was my BFF, who blogs over at Blessed Rain. I told her how I was completely blind-sided and how I felt defeated. I told her how tired I was of always fighting and how I needed to take a "mental break" the rest of the day, just so I could recuperate. I would get back on the "autism horse" the next day and begin fighting again for the rights of my child.

She was so supportive of me, very reassuring and telling me what a great mom I was. It's always hard for me to accept compliments, but my good friend always makes sure to give them to me, especially when I need them most. I don't know what I'd do without her. And to top it all off, she created a special award, of which I am honored to be the first recipient! Click HERE for the post she wrote and here is my shiny award:

http://telishag.blogspot.com/p/super-moms.html
I love my award and the very sincere sentiment behind it. Of all the awards I've won, this is by far the one that means the most to me. Thank you Blessed Rain!

Friday, May 25, 2012

The Horrors At Observation Day...

For those who follow my FB autism page, you know that I had a very rough week, but in particular a very rough day on Wednesday. I went to observe the new suggested class for my daughter Beauty, who is starting 1st grade in September. I wish I could say I was prepared for the meeting - and I thought I was - but nothing could prepare me for what I saw...

As a little bit of background, Beauty is now 6 yrs old, but still has a lot of struggles. For example, she is not potty trained yet, despite our best efforts. She also has many sensory issues, such as sensitivities to noises and lights. Beauty is also a very picky eater, though is coming out of her shell, per se, in the sense that she's at least willing to hold new foods in her hands, which has led to her adding 2-3 new foods to her diet in the last year. She's definitely making baby steps in the right direction. As for her cognitive function, Beauty truly is one of a kind. She's not a 'genius,' but she's incredibly smart for a six year old. Her teachers, past and present, have never had any issues getting her to understand academics. With all that in mind, one could make the determination that Beauty's autism is considered mild / moderate.

So imagine my surprise on Wednesday when I walked into this new suggested class for her. It's called an SEL class (Social / Emotional Learning) and the purpose is to teach autistic students to learn proper interaction with one another, while learning academics and attending to their sensory needs at the same time. It sounded great, but when I got there.... let's just say I'm surprised I didn't turn around running with my daughter in tow!

The classroom is very small, no bigger than a two-car garage. When I arrived, the teacher - a tall, thin, stocky guy who was not very personable - was teaching the kids "science" via a large pull-down screen, showing pictures of turtles. And in his monotone voice said "Look guys, it's a turtle. Turtles live in water."

There are two aides in the class, one of which seemed very nice. The other one, however, had a very stern look on her face and I overheard her bossing the kids around several times. She said things like, "I said sit down!" "Did I say you could get up?" "Are you supposed to be over here? Go sit!" She obviously had no problems saying those things right in front of me, it was just second-nature for her.

The room itself was very cluttered - toys hanging from the ceiling, pictures galore all over the walls, toys scattered everywhere, knick-knacks all over the room (mind you, things that the kids were NOT allowed to touch because they were breakable), plus 12 desks cramped together in the very middle of the room. On the right side, there was a 'sensory break area,' which was basically a bean bag and a balloon on a string hanging from a peg on the wall. That way, the kid could sit on the bean bag and hit the balloon at the same time - fun right? (sarcasm, btw)

During my brief conversation with the teacher, I'm informed that their main method of teaching is called Behavioral Conditioning. I'm not an idiot people (but they didn't know that). I know exactly what that means. If the child doesn't do what they're told, they get punished. If they listen correctly, they get rewarded. Now look, I know that for some children with autism, behavioral conditioning works great for them. But that particular kind of therapy is not the right fit for my daughter. I just spent the last year and a half teaching my daughter (via Floortime Therapy) how to think for herself, how to think outside the box, how to have her own opinions and ideas... behavioral conditioning could undo all of that! I also found out this classroom doesn't follow a rigid schedule - they don't even have a PECS system!

And lastly - oh yes, there's more - I've saved the biggest doosie for last. Right next to the sensory break area was something I never thought I'd see in person; certainly not in one of MY daughter's classes. But there it stood - 3 ft wide, 4 ft deep, 7 feet tall, with padding all along the inside. That's right folks! It was a padded cell! Oh, excuse me... a "seclusion room." I went into complete SHOCK! My mouth fell open and my eyes widened. NO WAY was I allowing my daughter to attend this class - NO WAY!

So there's the story of my horror visit. I have a meeting Tuesday morning with her teacher, the school coordinator, the OT and the ST. We will discuss the options available for my daughter to attend school in September. I sure hope they can offer me something better than what I witnessed on Wednesday. If they can't, I will gladly put my child in a private school, or hire a personal tutor, or just home school her myself. Either way, my child deserves better than what they deemed was an appropriate environment.

Tuesday, May 8, 2012

More Home Improvements =)

We've been busy here in the Walker household! Let's start with the backyard. To give you some perspective, here are BEFORE pictures of what our yard looked like when we first moved in nearly 4 years ago:

The playset did NOT come with the house.
There used to be a skating ramp in the middle.
Also notice the ugly, moldy fence.
 These conditions were definitely not ideal for my kids! Don't get me wrong, I LOVED the size of our yard. It's HUGE! But there was no way I was comfortable letting my kids go out and play in this. Everything was broken, moldy, sharp, or covered with weeds and twigs. When we bought this house in late '08, I made it my mission to turn this yard into something beautiful and child friendly. Which brings me to this next set of photos. I definitely feel much more comfortable sending my kids outside now!.

In a previous post, I shared some pictures of our new deck. That was one of the first steps to improving the yard. In another post, I shared a few more improvements, such as replacing the middle section of our yard with stamped concrete, and installing green rubber tiles to put under the playset (that way if the kids fell, it would be a relatively soft landing). Here are our newest pictures of the yard:

The gray shed used to be behind the swings.
New rope swings bought by my BFF and her hubby.

New carpet or "fake grass" for the play area.
New gravel area w/ LED decorative stakes

New mini-fences keeps gravel in place
Weeds were everywhere here, but not anymore!

Dirt area was raked several times.
New green fake grass covers dirt and mud!

East facing shot of our yard.
Deck w/ Shed moved to new spot

Another angle of the play area.
West facing shot of our yard


It's hard to see, but the LED stakes are glowing and changing colors.

Now for the rest of the improvements (wait, there's more???) YUP! Like I said, it's been pretty busy around here. And before I go any further, I absolutely must say BRAVO and THANK YOU to my sister, my BFF and her husband for helping with all of these projects!!! And of course, thank you to my husband for being supportive of all my insane ideas! Seriously, I wouldn't have been able to do any of it without their help. Let's remember people, I have weak fingers, sensitive muscles, and very limited free time to do anything. Without their help, none of this would've been possible! Now I won't bother posting a picture of everything we did (this post would end up being HUGE!), so here's a snapshot of the list of achievements:



This list may seem small, but I can't tell you how much time and work some of these things took. I am so thrilled to have accomplished so much so quickly (about 1 1/2 months). I now have a new closet rod and shelf in the storage room (so I can hang my non-seasonal clothes), I have a new microwave (which hangs over the stove instead of taking up counter space), I've got a new mesh screen over the deck doors so bugs can't get in (and if you want one too, find them here - they're awesome!), the kids have their new fake grass in the play area, AND I have the new gravel area in the backyard with those pretty LEDs. Thanks to my BFF and her husband, not only did they help me put the gravel in, but they were able to help me get the gravel for FREE (they have a friend in the cement business). I was able to fill in the back area with gravel and fill in my rock garden in front of the house:

This area used to be overgrown with weeds.

See those mini-fences? They also helped me get those fences in, both in the front yard and back yard. My sister and husband also helped with that. One more project I'll mention is the storage shed. That took so much work to move as it was very heavy and putting it back together ended up being more complicated than anticipated. Thank you very much to my BFF's husband for doing that for me! Thanks to him, the storage shed is now sitting next to our other storage shed and not taking up this back corner of the playground:

I now have the space for a new gazebo or patio area!

Whoo-hoo!!! =D And there were so many other little things that were done too. I am so, so, SO HAPPY with the improvements/additions to the home, both inside and out. More importantly for me though, is knowing that my kids have a fun and safe area to play in. The new fence (with gates and locks and both sides of the house) ensure that my kids will stay safely in the backyard. The gravel area keeps away nasty weeds, and the kids like walking on the gravel too! The rope swings under the deck give the kids the sensory input they need when they want to feel hugged. And then of course, the fake grass keeps their play area nice and clean, without having to worry about the ground getting muddy when it rains outside.

I am so very, very blessed to have such a great husband, sister, and friends who take the time to help improve my kids' lives. My main goal is their safety and happiness, and I am so grateful to be able to provide the kind of life I never had for my children. Thank you EVERYONE! It really does take a village!

My kids on the left; BFF's kids on the right
Macho loves his new swing

Macho loves his new bouncy ball
Beauty modeling her Angry Bird hat

Playing with Bubbles!
Did I mention they love bubbles?

Sunday, May 6, 2012

I've Been Given Blogger Awards!

(NOTE: These awards were given to me via my autism blog, Speaking On The Spectrum)

I want to give a BIG HUG and THANK YOU to both My Corner of the Pond and A Chameleon in the Spectrum for awarding me the Versatile Blogger Award!

 

I also want to give an equally BIG HUG and THANK YOU to Autism Island for awarding me the Kreativ Blogger Award! (Note: Her original post is gone since she recently converted her original blog to a new one).

  

The rules for the awards are the same:
  • Thank the person who awarded you and link back to them in your post.
  • Tell 7 random facts about yourself.
  • Pass the award on to 15 bloggers (or as many you feel deserve the award)
  • Contact each blogger to let them know of their award. 

Now for the 7 random things about me:
  1. I love dancing! Salsa, Merengue, Swing and Lindy Hop are my favorite styles. I used to help teach dancing at the University of Utah with my friend who ran a dance club there. If anybody needs dancing lessons, I can teach you (both girls and guys).
  2. I love to sing. I've been in choirs and groups all my life. I've sung at Radio City Music Hall, Carnegie Hall, for Mayor Giuliani, Washington, DC at the White House, and at several smaller shows and competitions which aired on TV. I even tried out for the Broadway show "Joseph and the Amazing Technicolor Dreamcoat," but was denied 'cause I looked too old (I was 14 yrs old at the time). I wish my current situation would allow me more time to practice.
  3. I'm a cleaning fanatic! I can't stand seeing my house look dirty and I pride myself on making my house look nice. My favorite thing is when people come over unannounced and they say, "Wow, your house is really clean!"
  4. When my kids are older, I plan on returning to college and studying to be a Special-Needs Therapist, focusing on OT and Floortime/DIR Therapy (Play therapy).
  5. I live in Utah, one of the most "outdoorsy" states in the U.S., but I am not an outdoorsy person at all! I hate planting, gardening, hiking, biking, camping, fishing, skiing, snowboarding and anything else that has to do with nature. If I had my druthers, I'd pour cement all around my house and never have to worry about weeding  or bugs again!
  6. I've never had an interest in politics - in fact I've always despised it. Which is why it's so odd that, through my children, I've become motivated to help pass legislation and "right the wrongs" of the world by working with the Utah Autism Coalition. Seriously, I never saw myself doing anything in politics - ever!. 
  7. When I was 14 years old, I was walking towards the subway station (grew up in Bronx, NY) and there was this guy shooting a gun. As he turned to run up the stairs to the main street level, he let off another shot and the bullet flew right over my head. That's my near death experience (I have another one, but I'll save that one for later).
And now to give these awards to other awesome blogs! Now, there's no way I'm listing 30 blogs (15 for each award), so I'm just going to split the awards. First up - the Versatile Blogger Award:

  1. Afton's Army
  2. Apples and Autobots
  3. Autism Wonderland 
  4. Bubble Gum On My Shoe
  5. Mommy To Two Boys
  6. MOM - Not Otherwise Specified
  7. Autism Army Mom
And the award for Kreativ Blogger:
  1. Jazzygal 
  2. Living with Logan
  3. My Dishwasher's Possessed!
  4. Pre-School Play
  5. Raising Asperger's Kids
  6. Stark. Raving. Mad. Mommy.
  7. The Awesome Mom
  8. The Squashed Bologna
Thanks again for my awards, My Corner of the Pond, A Chameleon in the Spectrum, and Autism Island! =D